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The Time Detective

A Genealogically Led History of Huntington's Disease (150 pages)

A Genealogically Led History of Huntington's Disease (150 pages)

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150 Page PDF File - The author’s father, John Lewis Mervyn Binnie-Dawson, died of Huntington’s disease (HD) in 1987, aged 57 years. HD is a genetic condition inherited from an affected parent with a 50% probability. It causes progressive neurological and physical debility in the sufferer, not unlike Alzheimer’s and Parkinson’s, but with onset in mid-age. Due to unfortunate circumstances, my father had no idea he’d inherited the gene and fathered eight children before he was diagnosed. We now know that all but one of us dodged the genetic bullet, and the one sibling who did inherit the gene, did not have children of his own. This paper tells my family’s HD story, reaching back in time to discover its destructive path through the generations and exploring the legacy of secrecy that surrounded it.
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